Object's details: A fetus or child with a lethal defect syndrome: from diagnosis to the end of life. Experiences of medical staff and parents in perinatal palliative care

Provider:Platforma Otwartych Czasopism Naukowych UAM

Description

Title:
A fetus or child with a lethal defect syndrome: from diagnosis to the end of life. Experiences of medical staff and parents in perinatal palliative care
Creator:
Gruca-Stryjak, Karolina;
Łuczak-Wawrzyniak, Jadwiga;
Borkowska-Kłos, Monika
Description:
Epidemiological studies indicate a significant risk of congenital malformations in about 2–3% of pregnancies, rising to 20% for perinatal deaths associated with polyposis. Approximately 15% of all congenital anomalies have a genetic background, some of which have serious clinical consequences. Modern prenatal diagnostic methods allow increasingly precise examination of the fetus, including ultrasound, biochemical tests, and analysis of extracellular DNA in the mother’s blood. This paper presents the experiences of medical staff and parents in the care of fetuses with adverse prenatal diagnoses, focusing on the provision of perinatal palliative care. A retrospective analysis of clinical cases and a questionnaire survey of medical staff were conducted at the Gynecological-Obstetric Clinical Hospital of the Medical University of Poznan. The results show that approximately 7–9% of patients with an unfavorable prenatal diagnosis receive perinatal palliative care. The survey of medical staff shows the different experiences of palliative care in childbirth and the importance of the birth plan for doctors and midwives. These findings may help to improve the quality of medical care for fetuses with fatal defects and better integrate medical staff into the perinatal care process.
Object availability:
free access
Rights:
Prawa autorskie (c) 2024 Karolina Gruca-Stryjak, Jadwiga Łuczak-Wawrzyniak, Monika Borkowska-Kłos;
https://creativecommons.org/licenses/by/4.0/deed.pl
Date:
2024.06.21
Type:
info:eu-repo/semantics/article;
info:eu-repo/semantics/publishedVersion;
Artykuł recenzowany
Language:
Polish
Source:
Człowiek i Społeczeństwo; Vol. 57 (2024): Współczesne rodzicielstwo – dylematy i wyzwania; 97-121;
Człowiek i Społeczeństwo; Tom 57 (2024): Współczesne rodzicielstwo – dylematy i wyzwania; 97-121;
2956-5243;
0239-3271
Format:
application/pdf
Publisher:
Uniwersytet im. Adama Mickiewicza
Relation: http://pressto.amu.edu.pl/index.php/cis/article/view/39866/36146
Subject:
wady letalne;
diagnostyka prenatalna;
perinatalna opieka paliatywna;
poradnictwo genetyczne;
lethal defects;
prenatal diagnosis;
perinatal palliative care;
genetic counseling
Identifier: http://pressto.amu.edu.pl/index.php/cis/article/view/39866
Data provider:
Platforma Otwartych Czasopism Naukowych UAM

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Object's details: A fetus or child with a lethal defect syndrome: from diagnosis to the end of life. Experiences of medical staff and parents in perinatal palliative care

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